So, from my last visit I had a scare. It was a possibilty that my kidneys were in trouble, but it turns our everything is okay. And my doctor told me at my last appt on July 21st that my lupus was not active right now. I didn't expect her to say that. So that is great news. On the other hand I'm still extremely aching and still have to take Tylenol to go to sleep most nights.
I also went to a Retina specialist and he said my retina was attached and seems to be fine. So I may be able to have another surgery on my eye and possibly see out of it again. I don't even want to get to excited about that though. We'll just see how it goes.
Things are going Better
Posted by
Nia
at
Friday, July 24, 2009
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3 comments:
Nia,
Sorry for commenting you here through a post. I didn't know how else to make contact. I wanted to pass along a new Lupus resource.
It is through a website www.lupus.physiciansforpatients.com
It is a community of lupus folks that interact online to give one another support.
There is a dedicated physician on the site to answer questions for the patients.
We originated as a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a free resource to people that need alternative opinions and information. There are a lot of people that have limited access to health care (can’t find a specialist in their area, long wait times, etc.). This way it is easier for a smaller number of physicians to help a larger number of people.
Dr. Shanahan is the doctor. He is board certified in Rheumatology and trained at Duke University
In addition, we will be incorporating 'health trackers' soon! This tool can be used by the patients to track their symptoms and to see what may be contributing to them.
Physicians for Patients will also be looking for associations (trends in complex data sets of the cumulative data collected in this large community of patients. This is done in an automated anonymous manner). This is the exciting part! Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand Lupus and hopefully to guide us to new potential treatments.
Please help us to spread the word about what we are trying to do (any group messages that can be sent/ links/ blogs are much appreciated) In order for us to make some new head way into better understanding lupus through identifying new correlations we need quite a large people to participate.
Thx!
Art
Dr. K
Thanks for the info. I'll check it out
Thanks to this great herbal doctor who cured me of LUPUS DISEASE his name is Dr. Iyabiye. I suffered LUPUS for over 12 years with pains like: Achy joints, Skin rash, Pain in the chest, swollen joints and many more. The anti-inflammatory drugs couldn’t help, until I read about his recommendation 4 months ago, I contacted him and he administered his medication on me and I was confirmed cured and free at the hospital after taken his medication. You too can be cured if interested. Contacts: iyabiyehealinghome@gmail.com
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